Seeking patient partner with lived experience of claudication for rapid guideline (total 8-10 hours over 4-5 months)
Who are we?
The Primary Care WikiRecs Group is looking for patient partners to be on a guideline panel for a rapid primary care guideline. The WikiRecs initiative is to translate potentially practice changing evidence into trustworthy, international guidelines in a short time frame, which are developed by a team of clinicians, methodologists, and patients. The chair for this guideline is Dr. Bert Aertgeerts (https://www.kuleuven.be/wieiswie/en/person/00002409).
What is the project?
The guideline question is: In patients with claudication, should we recommend supervised exercise therapy or angioplasty?
What is required?
The ideal patient partner would be someone with lived experience of claudication. A carer would be appropriate, if they feel they can speak to the values and preferences of patients for whom the guideline would apply to. The time commitment would be approximately 4-5 months, and the total active involvement time is approximately 8-10+ hours (depending how involved you would like to be). The tasks include: 1) review and provide feedback on the systematic review protocol, to identify and prioritize patient-important outcomes, 2) participate in an introductory session to explain the evidence from the systematic review (generated by separate team), and answer any questions you may have, 3) participate in a teleconference with the guideline panel (clinicians, methodologists, patient partners) and draft recommendations, and 4) review and provide feedback to the guideline manuscript and decision aids. All communication is online. This guideline group is based in Belgium, on Central European Time (CET). No specific skills are required - we have worked with partners who had experience with Cochrane systematic reviews, and partners who did not. We provide training and are happy to answer any questions you may have, so that you feel confident contributing to the discussion.
More information about the team
The WikiRecs initiative is a project with the MAGIC research and innovation program (http://magicproject.org). Under the WikiRecs initiative, we are doing a series of guidelines with the BMJ, entitled BMJ RapidRecs, described in a video here: http://www.bmj.com/content/354/bmj.i5191. With the BMJ RapidRecs, we have worked with patient partners for four guidelines, summarized in an editorial here: http://www.bmj.com/content/356/bmj.j939.
The WikiRecs has a strict policy regarding financial and intellectual conflicts of interests. All guideline panel members (clinicians, methodologists, patient partners) must be approved by the WikiRecs executive before participating in the project.
Express your interest
Send Trudy Bekkering a message explaining why you're the best person to help. Be specific about your skills. They'll also receive a link to your profile on TaskExchange so make sure it's up to date.
Please see above description under "What is required?".