Consumer Network

Seeking Patient Partner for Guideline Panel on Prostate Specific Antigen (PSA) Screening - 3 months, approx 10 hours, starting Fall 2017

Skills: Summary of Findings Tables, Review - Consumer, Report Writing, Question Formulation, Protocol Development, Consumer Input

Who are we?
The BMJ RapidRecs Group is looking for patient partners to be on a guideline panel for a rapid guideline. This project is under the WikiRecs initiative, where our mandate is to translate potentially practice changing evidence into trustworthy, international guidelines in a short time frame, which are developed by a team of clinicians, methodologists, and patients. The chair for this guideline is Dr. Kari Tikkinen (https://tuhat.helsinki.fi/portal/en/persons/kari-tikkinen(c679aa82-3127-4a14-8d31-7fdc3cdbe6ee).html) from the CLUE Working Group (http://clueworkinggroup.com).

What is the project?
The guideline question is: In asymptomatic men who are eligible for prostate specific antigen (PSA) screening, should it be recommended? The WikiRecs initiative is a project with the MAGIC research and innovation program (http://magicproject.org). Under the WikiRecs initiative, we are doing a series of guidelines with the BMJ, entitled BMJ RapidRecs, described in a video here: http://www.bmj.com/content/354/bmj.i5191. With the BMJ RapidRecs, we have worked with patient partners for four guidelines, summarized in an editorial here: http://www.bmj.com/content/356/bmj.j939.

Who are we looking for?
The ideal patient partner would be someone is eligible for prostate specific antigen (PSA) screening: asymptomatic (e.g. no reason to consider prostate cancer), otherwise healthy man aged approximately 45-75. The goal is to include patients who the guideline would apply to on the guideline panel.

What is required?
The time commitment would be approximately 3 months, and the total active involvement time is approximately 8-10+ hours (depending how involved you would like to be). The tasks include: 1) introduction call about the guideline involvement process and the commitments from the patient partners (30-45 minutes), 2) review and provide feedback on the systematic review protocol, to identify and prioritize patient-important outcomes (45+ minutes), 3) participate in an introductory session to explain the evidence from the systematic review (generated by separate team), and answer any questions you may have (60-90 minutes), 4) participate in a teleconference with the guideline panel (clinicians, methodologists, patient partners) and draft recommendations (120 minutes), and 4) review and provide feedback to the guideline manuscript and decision aids (60+ minutes). All communication is online. This guideline group is based in Helsinki, Finland. No specific skills are required - we have worked with partners who had experience with Cochrane systematic reviews, and partners who did not. We provide training and are happy to answer any questions you may have, so that you feel confident contributing to the discussion.

Timelines
An upcoming large clinical trial on PSA screening will be published this fall. We want to get the panel started immediately, but the breadth of the time commitment will be closer to September 2017.

Important note
WikiRecs and The BMJ have a strict policy regarding financial and professional/intellectual conflicts of interests. All guideline panel members (clinicians, methodologists, patient partners) must be approved by the WikiRecs executive and The BMJ before participating in the project. Our goal is to have a panel that is able to objectively review the evidence and draft recommendations without bias.

Ideal Applicant

Please see above in the description, "Who are we looking for?"

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