Seeking Patient Partner for Guideline Panel on Colorectal Cancer Screening - 3 months, approx 10 hours total, starting Fall 2017
Who are we?
The BMJ RapidRecs Group is looking for patient partners to be on a guideline panel for a rapid guideline. This project is under the WikiRecs initiative, where our mandate is to translate potentially practice changing evidence into trustworthy, international guidelines in a short time frame, which are developed by a team of clinicians, methodologists, and patients. The chair for this guideline is Dr. Gordon Guyatt (https://fhs.mcmaster.ca/ceb/faculty_member_guyatt.htm).
What is the project?
The guideline question is: In asymptomatic adults (aged approx 50-75) who are eligible for colorectal cancer screening, should it be recommended? The WikiRecs initiative is a project with the MAGIC research and innovation program (http://magicproject.org). Under the WikiRecs initiative, we are doing a series of guidelines with the BMJ, entitled BMJ RapidRecs, described in a video here: http://www.bmj.com/content/354/bmj.i5191. With the BMJ RapidRecs, we have worked with patient partners for four guidelines, summarized in an editorial here: http://www.bmj.com/content/356/bmj.j939.
Who are we looking for?
The ideal patient partner would be someone is eligible for colorectal screening: asymptomatic (e.g. no reason to consider colorectal cancer, such as bleeding), aged approximately 50-75. Partners may have had experience of colonoscopy/flexible sigmoidoscopy, and may have any comorbidities, except inflammatory bowel disease (Crohn's, colitis, etc.). Those with a family history of colorectal cancer are also eligible. The goal is to include patients who the guideline would apply to on the guideline panel.
What is required?
The time commitment would be approximately 3 months, and the total active involvement time is approximately 8-10+ hours (depending how involved you would like to be). The tasks include: 1) introduction call about the guideline involvement process and the commitments from the patient partners (30-45 minutes), 2) review and provide feedback on the systematic review protocol, to identify and prioritize patient-important outcomes (45+ minutes), 3) participate in an introductory session to explain the evidence from the systematic review (generated by separate team), and answer any questions you may have (60-90 minutes), 4) participate in a teleconference with the guideline panel (clinicians, methodologists, patient partners) and draft recommendations (120 minutes), and 4) review and provide feedback to the guideline manuscript and decision aids (60+ minutes). All communication is online. This guideline group is based in Hamilton, Canada. No specific skills are required - we have worked with partners who had experience with Cochrane systematic reviews, and partners who did not. We provide training and are happy to answer any questions you may have, so that you feel confident contributing to the discussion.
An upcoming large clinical trial on colorectal cancer screening will be published this fall. We want to get the panel started immediately, but the breadth of the time commitment will be closer to September 2017.
WikiRecs and The BMJ have a strict policy regarding financial and professional/intellectual conflicts of interests. All guideline panel members (clinicians, methodologists, patient partners) must be approved by the WikiRecs executive and The BMJ before participating in the project. Our goal is to have a panel that is able to objectively review the evidence and draft recommendations without bias.
Please see the description above.