Patient partner for guideline panel (experience of intensive care stay AND/OR gastrointestinal bleeding) - March-May 2019, approx 10 hours total
We're looking for patient partners with lived experience of intensive care unit stay, an upper gastrointestinal bleed (esophagus, stomach), or both, to join our international guideline panel team - we're developing a recommendation on using acid suppression medication among patients who are critically ill to prevent gastrointestinal bleeding.
*Why are we doing this?*
There are benefits and harms to using acid suppression medication to prevent gastrointestinal bleeding for patients in the intensive care unit, and different hospitals internationally vary in their use. Recently, a study on using acid suppression medication (pantoprazole, a proton pump inhibitor) to prevent gastrointestinal bleeding in patients in the intensive care unit was published (Link = https://www.nejm.org/doi/full/10.1056/NEJMoa1714919). The results showed that patients who received the medication compared to patients who received placebo (i.e. no medication) had similar risks of death and of a combination of any critical event (including gastrointestinal bleeding, pneumonia, Clostridium difficile gastrointestinal infection, and heart attack). However, gastrointestinal bleeding alone was slightly reduced (4.2% in the placebo group versus 2.5% in the medication group). This trial may potentially change clinical practice and improve patient care. However, first we need to carefully consider the evidence, and make sure we are answering the right questions and making recommendations that matter to patients.
*Who are we?*
The BMJ Rapid Recommendations (RapidRecs) is an initiative from the MAGIC research and innovation program (http://magicproject.org) and The BMJ: http://www.bmj.com/rapid-recommendations. We have published
Our guidelines are developed by a team of clinicians, methodologists, and patients. We aim to translate potentially practice changing evidence into trustworthy, international guidelines and decision aids in a short time frame.
*Who are we looking for?*
We're looking for adults and children who have lived experience with 1) being in the intensive care unit, 2) an upper gastrointestinal bleed (esophagus, stomach), or 3) both.
*What is required?*
The time commitment would be approximately 3 months, and the total active involvement time is approximately 8-10+ hours (depending how involved you would like to be). The tasks include: 1) introduction call about the guideline involvement process and the commitments from the panel members (30-45 minutes), 2) review and provide feedback on the systematic review protocol, to identify and prioritize patient-important outcomes (30-45 minutes), 3) participate in an introductory session to explain the evidence from the systematic review (generated by separate team), and answer any questions you may have (60-90 minutes), 4) participate in a teleconference with the guideline panel (clinicians, methodologists, patients) and draft recommendations (90 minutes), and 5) review and provide feedback to the guideline manuscript and decision aids (60+ minutes).
All communication is online. This guideline group is international. No specific skills are required - we have worked with partners who had experience with Cochrane systematic reviews, and partners who did not. We provide training and are happy to answer any questions you may have, so that you feel confident contributing to the discussion.
WikiRecs and The BMJ have a strict policy regarding financial and professional/intellectual conflicts of interests. All guideline panel members must be approved by the WikiRecs executive and The BMJ before participating in the project. Our goal is to have a panel that is able to objectively review the evidence and draft recommendations without bias.
Please see above.